First Annual MS Connections Conference
October 23 & 24th at the Century Casino and Hotel Edmonton, AB
Thank you to everyone who participated in the 2009 MS Connections Conference! The weekend was a very big success! We had 300 registrants, 25 volunteers, and 15 exhibitors! A very special thank you to our presenters who all gave extraordinary presentations, to our volunteers who were instrumental in our success, to our venue host the Century Casino & Hotel for providing a spectacular venue, to our sponsors for support this endeavor, and of course, to you, for taking time out of your busy lives to participate in this experience. Thank you all for making this a memorable event!
Welcome | Speaker Presentations| Conference Program Book
Speakers | Information & Resource Fair | Sponsors
A Warm Welcome From Our Honorary Co-Chairs!
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Bob Macklon
Welcome to Connections 2009 your opportunity to stay abreast of the latest in Multiple Sclerosis research and therapies. "As someone with Multiple Sclerosis it is important to me to understand my disease and how best to cope with its challenges". Connections 2009 gives me the opportunity to get answers to my questions from people knowledgeable in the field, to discover new strategies for living with MS and to network with others involved in living with, treating and finding a cure for Multiple Sclerosis. |
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Joyce Kropiniski
"I am very pleased to be one of the co-chairs for the Connections 2009 Conference, and as such, would like to encourage anyone and everyone that is affected by MS to attend this conference.
I am a firm believer in the adage that “knowledge is power” and this conference provides a wonderful opportunity to gain knowledge in a variety of areas. It is not often that we are fortunate enough to have an event like this, with such a superior line-up of speakers and topics. Personally, I found it difficult to select the sessions I would attend – I wanted to attend all of them!" |
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Dr. Mary Lou Myles
Welcome to Connections 2009 – An MS Conference for persons affected by MS, caregivers, community service providers, students and health professionals. Our theme this year is “Connections 2009.” The concept of connection has numerous meanings within the context of this event. First it speaks to the importance of the health care community and community based resources and organizations such as the MS Society, working together to bring the very latest in research and education to persons affected by Multiple Sclerosis. It also speaks to the role of community in self advocacy and to people affected by MS connecting, coming together and working together to solve problems and get community needs met. We are extremely grateful to the wonderful line up of speakers who have agreed to spend time with us over these two days. We certainly hope that you enjoy this two day event and trust that you will take away new ideas and information that will make a meaningful difference. |
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Speaker Presentation Slides
Many inquires have come in from conference attendees asking for speaker presentations to be made available for viewing. We have been in contact with conference speakers and many have graciously agreed to allow us to post their presentations on the conference website. Within this section you will only find copies of those presentations that speakers have granted access for.
Also please note that files can only be viewed and cannot be modified or printed, this is in order to protect the intellectual property of the presenter. If you would like a hard copy of a specific presentation listed on the webpage please contact the MS Society of Canada – Edmonton Chapter at 780-462-1190.
To access a presentation please click on the appropriate link below. All files are in PDF format and require a current version of Adobe Reader.
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Speakers
Dr. Al Condeluci
 Brief Abstract and Title:
Cultural Shifting : Building Inclusive Communities for All
All of us are interested in a better community where all people have an opportunity for accessible and affordable homes, jobs or meaningful daytime opportunities and lifestyles of their choice. Yet, many of the vulnerable people we serve were (and most still are) in isolated situations with limited options for friendships and important social relationships. This presentation takes a close look at the reasons why these struggles have existed and offers a community building perspective designed to shift the culture to be more inclusive and supportive to all people.
Learning Objectives:
At the end of this presentation participants will:
1. Participants will understand the historical development related to difference,disability, aging and other devaluing aspects.
2. Participants will be introduced to the Interdependent paradigm
3. Major aspects of culture and community will be overviewed
4. The importance of Social Capital will be explored
Click here to read more...
Dr. Rudy Dressendorfer
 Brief Abstract and Title:
Exercise Therapy in Multiple Sclerosis: State of the Art and Future Considerations
In this presentation, Dr. Dressendorfer will review current theory and research on the adjunctive role of exercise for reducing disability in multiple sclerosis. He will also discuss exercise management guidelines and introduce the benefits of novel modes of exercise intervention.
Learning Objectives:
Rudy hopes that his presentation will enhance your ability to:
- List some theoretical and evidence-based benefits of exercise therapy in MS,
- Describe different modes of exercise for MS patients, and
- State some guidelines for prescribing exercise in MS.
Postural Alignment Therapy in Multiple Sclerosis
(Presenting in conjunction with Jen Fuller)
This workshop will provide a practical discussion of specific home-based exercises for correcting deficits in posture, balance and gait that are commonly seen in MS patients. Rudy and Jennifer will demonstrate the exercises and they welcome audience participation.
Learning Objectives:
Their presentation will hopefully increase your ability to:
- Identify some body alignment problems in MS
- List some exercises for improving posture, balance or gait in MS, and
- Demonstrate these exercises.
Click here to read more...
Dr. Michael Yeung
 Brief Abstract and Title:
The Future of MS Therapeutics
This presentation will provide an overview and insight into potential new treatments for persons living with Multiple Sclerosis
At the end of this presentation participants will:
- Understand the targets of future treatments.
- Learn about some of the new treatments in development.
Click here to read more...
Dr. Jacqueline Bakker
 Brief Abstract and Title:
Battling Fatigue in MS
Fatigue is extremely common in MS. This presentation will describe and differentiate the various causes for fatigue as well as give information on how to treat it conservatively and medically.
Learning Objectives:
At the end of this presentation participants will:
- Understand the incidences of fatigue in MS and how it affects them
- Understand the various causes of fatigue outside of MS.
- Understand the various treatments available, both conservative and medical.
Dr. Shaniff Esmail
 Brief Abstract and Title:
The Impact of MS on Sexual Functioning and Relationships
Sexuality is an essential part of the human experience. Physical and emotional changes associated with MS potentially can affect sexual health adjustment and creates concerns surrounding sexuality. This interactive presentation will describe the impact of MS on an individual’s sexuality and relationships. Results of a two part qualitative research study will be reviewed - describing the lived experience of couples where one partner had been diagnosed with M.S. The session will conclude with a review of strategies, which have been shown to be effective with helping individuals and couples contend with MS as it relates to sexuality.
Learning objectives:
By attending the session participants will:
- Gain an understanding of the impact of M.S. on sexuality
- Appreciate the importance of mutual responsibility when looking at MS as a couple’s issue.
- Learn effective strategies to deal with MS and its impact on sexuality.
Click here to read more...
Jen Fuller
 Brief Abstract and Title:
Postural Alignment Therapy in Multiple Sclerosis
(Presenting in conjunction with Dr. Rudy Dressendorfer)
This workshop will provide a practical discussion of specific home-based exercises for correcting deficits in posture, balance and gait that are commonly seen in MS patients. Rudy and Jennifer will demonstrate the exercises and they welcome audience participation.
Learning Objectives:
Their presentation will hopefully increase your ability to:
- Identify some body alignment problems in MS
- List some exercises for improving posture, balance or gait in MS, and
- Demonstrate these exercises
He is a member of the European Multiple Sclerosis Therapy Consensus Group, the European Committee for Treatment and Research in Multiple Sclerosis (ECTRIMS), and the Medical Advisory board of the Multiple Sclerosis International Federation (MSIF). Professor Rieckmann has also participated in advisory boards, and served as the principal investigator and on the steering committees of a number of international Phase II and III MS clinical trials. His current MS research activity focuses on gene expression, neuro-inflammation and the role of the blood–brain barrier and chemokines – Professor Rieckmann is also interested in the epidemiology and health economics of multiple sclerosis.
Click here to read more...
Fabrizio Giuliani
 Brief Abstract and Title:
Neuroprotection and Neuroregeneration in Multiple Sclerosis
Multiple sclerosis (MS) has traditionally been described as a demyelinating disease of the central nervous system (CNS). In the last few years, a shift has occurred and it has become more evident that MS is also a neurodegenerative disease. An increasing number of reports show neuronal and axonal damage in MS patients and in its animal model, the experimental allergic encephalomyelitis (EAE). The mechanisms underlying this neurodegenerative process are still unknown, but experimental data suggest an immune-mediated injury. This immune-mediated pathogenesis is supported by the significant infiltration of inflammatory cells in the brain and spinal cord. In addition, EAE is produced by an autoreactive immune cell response, and there is substantial similarity between active MS plaques and CNS lesions in EAE animals. In this presentation, the findings of immune-mediated injury in MS will be reviewed. New potential neuroprotective strategies and the potential neuroprotective role of some of the currently available MS treatments will also be addressed. Furthermore, we will review the importance and the potential neuroprotective effects of exercise for MS patients.
Click here to read more...
Jennifer Mah
Brief Abstract and Title:
Navigating the Medical System: The Role of the MS Nurse
What is the role of the MS Clinic? How does one get referred to the MS Clinic? How does a patient get a referral to a different neurologist? Why is it essential to have a family physician?
What is the role of the MS Clinic Nurse? Where does one call with questions/concerns, information and advise? How does an MS patient access comprehensive care? What resources can all patients access through self-referral?
Learning Objectives:
At the end of this presentation participants will:
- Understand the role that The MS Clinic, your neurologist, and your family physician play in your overall health
- How to access care; who to call and when
- Understand what resources a patient can access themselves
Click here to read more...
Laurel Morrison
 Brief Abstract and Title:
Bladder and Bowel Dysfunction in Multiple Sclerosis
Normal anatomy and physiology of the bladder and bowel, and the effect that multiple sclerosis may have on these two systems, will be presented. Prevention and management of the various symptoms will be discussed.
Learning Objectives:
At the end of this presentation participants will:
- Understand how the bladder and bowel may be affected by multiple sclerosis.
- Learn important preventative strategies.
- Recognize that these are very common symptoms that can be managed. Please let your neurologist or nurse know what is happening with your bladder and/or bowel function. We will work together to help improve your quality of life.
Click here to read more...
Dr. Mary Lou Myles
Brief Abstract and Title:
Shining a Light on Vitamin D and MS
The main objective of this presentation is to outline the impact of vitamin D deficiency in the development of MS and the potential role of vitamin D supplementation in the prevention and treatment of MS. The sources of vitamin D and the physiologic role of vitamin D in the human body will first be outlined. The evidence for the impact of vitamin D deficiency in influencing the risk of MS will be summarized. Finally, the evidence suggesting a potential benefit of vitamin D supplements for the prevention and treatment of MS will be explored. Other potential health benefits of vitamin D will also be summarized.
Learning Objectives:
At the end of this presentation participants will:
- Understand the role of vitamin D in altering the risk of MS
- Be aware of the rationale for Vitamin D supplementation as a primary prevention strategy in MS
- Be familiar with the evidence suggesting a role for vitamin D in the treatment of MS
Click here to read more...
Shanna Orvis, Shannon Currie, and Jennifer A. Clarke
Brief Abstract and Title:
CPP Disability
This presentation is focus on CPP Disability benefits: what the benefits are for, eligibility, start and end guidelines, late applications, return to work incentives, automatic reinstatement, reassessment, combination of benefits, international agreements, & the appeal process. The presentation will also provide a tiny snippet on My Service Canada Account, Registered Disability Savings Plan, and Employment Insurance.
Learning Objectives:
At the end of this presentation participants will:
- Understand of who CPP Disability benefits are for,
- Understand what they entail, and
- Know how to apply.
Click here to read more...
Dr. Jennifer Rodgers
 Brief Abstract and Title:
Coping with the Cognitive Aspects of MS
Cognitive change is now recognized as a common and potentially disabling symptom of multiple sclerosis. Understanding and coping with the variable nature of cognitive decline, positively impacts on one’s ability to continue working and contributes to a good quality of life. Coping with the Cognitive Aspects of MS will highlight the types of cognitive changes most commonly linked to the diagnosis of MS. Coping techniques and strategies to help individuals and family members understand and live well in spite of these challenges, will be provided.
Learning Objectives:
At the end of this presentation participants will:
- Better understand the kinds of cognitive changes that most commonly occur as a result of multiple sclerosis.
- Will be introduced to various coping strategies that help to minimize the cognitive symptoms of MS.
Click here to read more...
Aprile Royal
 Brief Abstract and Title:
Red Flags and Green Lights – Navigating the Early Days
Getting a diagnosis of MS is overwhelming for a variety of reasons, but there are strategies that you can employ to help ease some of the confusion and fear that threaten to take over. This presentation will explore common experiences, and offer suggestions for ways to stay in the driver’s seat as you come to terms with how this diagnosis will impact your life.
Learning Objectives:
At the end of this presentation participants will:
- Understand how to make good choices in managing their MS.
- Learn strategies for adapting to, and coping with life with MS.
Click here to read more...
Sushila Samy
Brief Abstract and Title:
How to Manage Employment Concerns – Human Rights in the Work Place
This presentation will provide an overview of the human rights legislation in Alberta. Within the presentation the areas and ground of the human rights legislation will be covered. Discussion and focus will also centre on duty to accommodate and disabilities in terms of what does that mean. Information will also be presented on how the complaint resolution process works.
Learning Objectives:
At the end of this presentation participants will:
- Understand duty to accommodate and disability.
- Understand how the complaint resolution process works.
Click here to read more...
Dr. Penny Smyth
 Brief Abstract and Title:
Pregnancy, Menopause, and Multiple Sclerosis
In this lecture, I will discuss the relative safety of pregnancy for women with multiple sclerosis. We will look at why pregnancy may settle MS relapses. We will then look at the hormonal changes during menopause and discuss how these hormonal changes may affect a woman’s MS symptoms. I will then discuss studies looking at female hormone supplements and their effects on MS, both in animal models of MS and in women who have MS.
Learning Objectives:
By the end of this lecture, participants will be able to:
- Describe the effects of pregnancy on multiple sclerosis relapses and symptoms as well as what happens after pregnancy.
- Discuss menopausal hormonal changes and how these changes may affect MS symptoms.
Discuss the possibility of using female hormone supplementation to affect the course of MS in the future.
Click here to read more...
John Soars
 Brief Abstract and Title:
Developing the MS Community
This session will involve a power-point presentation on the evolution of the MS Community followed by an interactive question and answer on the future of Community in the Alberta & Northwest Territories Division and Edmonton Chapter. Attendees will be invited to share their views on Dr. Al Condeluci’s keynote presentation and how it assists in development of the MS Community going forward.
Learning Objectives:
At the end of this presentation participants will:
- understand the history of MS Communities in Edmonton Chapter,
- understanding how the information in the Keynote Presentation by Dr. Al Condeluci connects with the process the MS Communities has been implementing,
- have input into the future plans for MS Communities from the participants of gathering, and
- come to an understanding and agreement on future steps.
Click here to read more...
Dr. Garry Wheeler
 Brief Abstract and Title:
The MS Community Advisory Council: Advocating for Change
On October 29th and 30th, 2008, the MS Society (Alberta) hosted a gathering of representatives from across Alberta’s MS community and the entire spectrum of MS treatment, care and support. Participants included clinicians and health care providers, community support organizations, government officials, and Albertans living with MS.
Their purpose was:
- To understand and learn from nine significant and current initiatives that each had the potential to significantly improve health and quality of life outcomes for Albertans with MS,
- To provide stakeholder feedback, input and advice to these initiatives, and
- To develop a ‘big picture’ perspective and identify how best to leverage and support current efforts.
There was consensus for the development of an ongoing forum or similar mechanism to support and facilitate communication and synergy among stakeholder groups. As a result the MS Community Advisory Council was formed.
In this session we will explore the development of the Council; the role of the council as an advocate for change, and current advocacy initiatives being undertaken by the council.
Click here to read more...
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Information & Resource Fair
Thank you to everyone who participated in the Information & Resource Fair:
- Easter Seals Alberta
- MS Society – Edmonton Chapter/Alberta & Northwest Territories Division
- MS Society – Alberta & Northwest Territories Division/Fundraising
- Safeway Pharmacy
- Alberta Caregivers Association
- Servus Credit Union Place
- Bayer Healthcare
- Information from Money Mentors
- Employabilities
- Dr. Kyli Shelly
- Yoga for Today
- Serono
- Red Deer Clinic
- Steadward Center
- City of Edmonton
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Sponsors
A very special thank you to all of our sponsors:
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