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British Columbia & Yukon Division
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BC CCSVI Registry

**This Registry is for patients who have had a CCSVI procedure and would like to share their experience.**

Background:

  • The BC CCSVI Registry is a province-wide program operated by the MS Clinic at UBC Hospital at Vancouver Coastal Health.
  • The purpose of the BC CCSVI Registry is to better understand the impact of interventional venous treatment.
  • The Registry hopes the data collected on the patient perspective of outcome (both positive and negative), the physician perspective of outcome (both positive and negative), and any safety concerns will help in developing treatment guidelines for ongoing care for those patients who have received treatment abroad and returned to BC.

Information for patients interested in participating:

Please call the following toll-free number or send an email and leave your contact information.

  • You can also give verbal consent to your physician (neurologists/family physicians) so that your contact information can be sent to the Registry for follow up. 
  • A Registry Interviewer will return your call or email, or follow up on your request via your physician, and provide you with details about the Registry.
  • Registration is voluntary. If you wish to register, you will be sent two copies of the Informed Consent Form - one is to be signed and returned to the Registry; the other is to be kept for your records.
  • Once your consent has been received, you will be interviewed by telephone using standardized questionnaires.

For more information about the registry please visit the
Vancouver Coastal Health Research Institute Website.

Press Release: BC CCSVI Registry Launched, Dec 8, 2011 [PDF]

For more information about CCSVI please visit ccsvi.ca


Our Mission :
To be a leader in finding a cure for multiple sclerosis and enabling people affected by MS to enhance their quality of life.
British Columbia & Yukon Division
Multiple Sclerosis Society of Canada
1103-4720 Kingsway
Burnaby, British Columbia V5H 4N2

To locate the MS Society office near you, please select the appropriate chapter: Telephone: (604) 689-3144
Fax: (604) 689-0377
Toll Free (BC): 1-800-268-7582
Toll Free (Yukon): 1-866-991-0577
info.bc@mssociety.ca