Privacy
and You
The MS Society of Canada Privacy and Confidentiality Policy
The
Multiple Sclerosis Society of Canada has always been aware
of its responsibilities in safeguarding the privacy of
people with MS, members, clients and donors. Since June
1989, the Multiple Sclerosis Society of Canada Confidentiality
Policy has protected the privacy and confidentiality of
people with MS. The Privacy and Confidentiality Policy
which comes into effect in Ontario as of January 1, 2004
supersedes the 1989 Confidentiality Policy since it both
includes and extends those requirements.
PIPEDA and the Multiple Sclerosis Society of Canada
This
policy is based on the 10 principles of the federal Personal
Information Protection and Electronics Documents Act (PIPEDA)
that guide how organizations collect and use personal
information. These principles are:
Accountability
Identifying
Purposes Consent
Limiting Collection
Limiting Use, Disclosure & Retention
Accuracy
Safeguards
Openness
Individual Access
Challenging Compliance
In
addition, the MS Society of Canada has developed its own
policies and regulations about the collection, use and
disclosure of information which in most instances are
more restrictive than those of PIPEDA and/or provincial/territorial
legislation. The Opal Information System Data Sharing
Principles (approved by the National Board of Directors,
June 9, 2001) secure MS Society of Canada information
to authorized users only and further restricts access
to individual health information only to authorized Client
Services staff and volunteers or their designates. The
Opal IS Data Sharing Principles also stipulate that MS
Society of Canada members will not be solicited (approached
for donations and/or participation in other fund raising
activities) on the basis of their memberships without
their express prior consent.
For
more information or to find out how you can obtain a copy
of our privacy policy please contact the MS Society of
Canada office at 1-800-268-7582 or visit www.mssociety.ca.
Vision
Statement
The Toronto Chapter of the Multiple Sclerosis Society
of Canada aims "to maximize the quality of life
for persons
with multiple sclerosis and their support network within
the Toronto Chapter's geographical boundaries."
To learn more.
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