Programs and Services

Conseils et soutien

  • Caregivers and Families

The Québec Division and its chapters offer psychological support and counselling. These services assist people who have just been diagnosed with MS, those who are having an attack, or the family members of a person with MS. Counsellors listen attentively, empathize and can suggest resources and potential solutions.

Hoping for the future, coping with the present


Hoping for the future, coping with the present program set up by the Quebec Division is for people who have just been diagnosed with multiple sclerosis. It consists of four information sessions on various aspects of MS.

This

program’s main objectives

are to:
  • help people who have just been diagnosed with MS to play an active role and be better equipped to establish relationships of trust with health professionals
  • provide up-to-date information about multiple sclerosis, treatments and ways that lifestyle may be changed by the disease (employment, insurance, diet, exercise, etc.) to people with MS and their families, in order to help them understand the disease better and, if need be, defuse the emotional response to the situation
  • treat the psychological impact of the disease on people with MS and their entourage, and discuss the grieving process
  • introduce the Multiple Sclerosis Society of Canada and the resources available in the community.

Programming:

Hoping for the future, coping with the present program is available in several chapters. Ask your chapter about the schedule for upcoming information sessions in your area.

To register or for more infos, contact your Local Chapter.

WikiGuideSP (Montréal et Montérégie) :

Un répertoire de ressources qui couvre Montréal et la Montérégie est maintenant disponible en ligne à WikiGuideSP.ca

The congrès Espoir

The congrès Espoir famille is an annual event organized by the Quebec Division. This conference is a unique opportunity for people with MS and their spouses, caregivers and children to get together and discuss topics that affect them.

The next Edition will be held at the Hôtel le Victorin from : October 23rd to 25th, 2015, at Victoriaville.

Please note that the activities and workshops at this event will be held in French. More information about the event will be available soon.

The Quebec Division would like to thank the sponsors of the 2014 congrès Espoir famille:
Biogen Idec, Genzyme, Novartis, Teva Canada Innovation and the Fondation Jacques-F. Gougoux

Caregivers

Let's re-read our mission: “To be a leader in finding a cure for multiple sclerosis and enabling people affected by MS to enhance their quality of life.” But who is affected by MS? Many people spontaneously assume it is those who have been diagnosed with the disease. Moreover, the MS Society has developed many programs and services to help people with MS improve their quality of life.

However, it would be a mistake to believe that the MS Society's role is limited to helping people diagnosed with MS. Our main client base is a much wider group, which also includes loved ones, such as family members (especially spouses and children), friends and other significant people, in addition to caregivers (who are not professionals and are unpaid), whether they are family members or not. All of these people are considered to be “people affected by MS,” as stated in our mission.

The MS Society recognizes the existence, role and needs of caregivers. However, what does caregiver mean? A caregiver (or natural caregiver) is defined as someone who helps a person with MS to compensate for a progressive loss of autonomy. In the community, caregivers play an important role. On a daily basis, they must balance their needs with those of a loved one who has disabilities. They are not always prepared for the job, which risks disturbing the harmony in their relationship. They are often faced with difficult choices and new situations, which are sometimes totally unexpected because of the unpredictable nature of the disease and require all types of adjustments and adaptations.

The MS Society's Quebec Division intends to develop, over the next few months, programs, services and tools to support caregivers in exercising their role with other organizations, either in partnership with them or not.

Which road should I take? Which path do I need to explore? Which door should I knock on? Who can I talk to about my concerns, worries and needs? Where should I direct my demands? Where can I find help? Which resources are available to me? What are my rights and how can I exercise them? All of these questions reflect the concerns of natural caregivers who wish, mainly and above all, to live in harmony and dignity with their loved one who has a disability.

At the start of the long trip you are ready to embark on with your caregiver, you will ask all of these questions, and reflection is needed to find answers. The natural caregiver should reflect on his or her reasons for taking care of a person losing autonomy, the responsibilities and requirements that the role entails, and the loved one's personal resources and limitations. Are the caregiver's expectations realistic and in keeping with the needs and expectations of the person requiring care?

Open navigation