Information and Resources
1:1 Caregiver Peer Support
1:1 Caregiver Peer Support
The Multiple Sclerosis Society of Canada is excited to expand the 1:1 Peer Support Program to caregivers (parents, spouses, friends, and family who care for people who live with MS). We recognize that for people who are informal caregivers for loved ones with MS, there are certain needs and subjects where talking to peers in similar situations can help provide some support and comfort.
The 1:1 Peer Support Program is a telephone/internet-based program for individuals living with MS and their caregivers. You or the person you care for may be newly diagnosed, you may have a specific question, or maybe you are dealing with an issue related to MS. Sometimes the best person to talk to is someone who has had similar experiences. Volunteers from across Canada are provided with extensive training to ensure they have the skills to best support you.
Contact the 1:1 Peer Support Program at firstname.lastname@example.org
or 1-800-268-7582 x3149 to request more information or an
application and indicate whether you live with MS or are a
Caregiver Partnership Webinars
As health charities supporting individuals with neurological conditions, the Alzheimer Society, the Multiple Sclerosis Society of Canada, and Parkinson Canada have natural commonalities in the demographics they serve and support. A key commonality is the caregiver, who provides support to people living with these respective diseases. Recognizing that there are many topics which appeal to all caregivers in the broader disease community, our three organizations decided to partner to offer online education initiatives. You can watch the recordings below.
June 26, 2018: Living with Grief Long Before Death
October 25th, 2017: "I don't know
what to say"... Beginning Difficult
December 10th, 2015: Taking Care of Yourself through the Ups and Downs of Caregiving
The Caregiver Network tele-learning session
In June 2008, The The Caregiver Network and the MS Society of Canada offered a national tele-learning session that connected caregivers and families to information and support. Here is the presentation and biographies from this call for your information.
November 8, 2017: Income Security and MS: Planning for the Future presented by the Volunteer Legal Advocacy Program from the British Columbia & Yukon Division
Caregiver Partnership Articles
As health charities supporting individuals with neurological conditions, the Alzheimer Society, the Multiple Sclerosis Society of Canada, and Parkinson Canada have natural commonalities in the people they serve and support. A key commonality is the family caregiver who provides support to people living with these respective diseases. Our organizations have partnered to share resources and provide new information and webinars to support family caregivers.
MS Society Publications for Caregivers
A Guide for Caregivers
(PDF: 935 KB)
This guide provides information on practical issues faced by caregivers. A resource list is included.
Caring for the Caregiver newsletter
- Fall 2015 (PDF: 574 KB)
- Spring 2015 (PDF: 647 KB)
- Fall 2014 (PDF: 548 KB)
- Spring 2014 (PDF: 906 KB)
- Fall 2013 (PDF: 686 KB)
- Spring 2013 (PDF: 769 KB)
- Winter 2013 (PDF: 730 KB)
- Winter 2012 (PDF: 519 KB)
- Summer 2011 (PDF: 359 KB)
Other MS Society Publications
Resource Library - MS Canada magazine, booklets, books and DVDs, learning events, websites related to MS
MS in Focus Magazine
MS in Focus
The Multiple Sclerosis International Federation produced MS in Focus, a free magazine produced twice yearly in English, Spanish and German. The final issue, Issue 16 focused on caregiving and MS
Online Caregiver Resources
- Carers Canada (formerly Canadian Caregiver Coalition)
- Saint Elizabeth
- Elizz Caregiver Support and Home Care services
- The Caregiver Network
- Canada Cares
- Victorian Order of Nurses
- Health Gateway
- Institut universitaire de gériatrie de Montréal
- National Multiple Sclerosis Society (USA)
- Multiple Sclerosis Society (UK)